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Table 2 Additional themes identified in interviews

From: Avoidance as a strategy of (not) coping: qualitative interviews with carers of Huntington's Disease patients

Themes Examples
Motivation for being a carer • Marriage vows
• Memories of past life together
Changing roles and relationships • Demise of reciprocal loving relationship
• Loss of independence
Coping mechanisms • Living environment
• Slow course of HD
Employment & financial changes • Loss of employment
• Lower income
Experiences of social/ health care services • HD management
• Respite care
Scottish Huntington's Association • Practical advise
• Emotional support
Living with HD • Impact of the disease
• Personal development of carers