|
1. Proactivity and determination to seek information
|
1. Proactivity and determination to seek information
|
I keep looking until I get all the information that I need
|
Information seeking
|
9
|
9
|
8
|
Agree/disagree
|
|
2. Information presented in quality formats
|
Subsumed into “Adequate information about cancer and cancer management” to minimize questionnaire length
|
-
|
-
|
-
|
-
|
-
|
|
3. Understanding the healthcare system
|
2. Understanding the healthcare system
|
I understand what healthcare services the person I care for is entitled to
|
Comprehension
|
7
|
9
|
9
|
Agree/disagree
|
|
4. Understanding the disease, treatment, and potential outcomes
|
3. Adequate information about cancer and cancer management
|
I have all the information I need to help look after the health of the person I care for
|
Comprehension
|
8
|
8
|
8
|
Agree/disagree
|
|
5. Information for day-to-day care
|
Subsumed into “Adequate information about cancer and cancer management” to ensure relevance of items to all caregivers
|
-
|
-
|
-
|
-
|
-
|
|
6. Processing health information
|
4. Processing health information
|
[Please indicate how easy or difficult the following tasks are for you to do now:] Compare information about cancer from different sources
|
Critical thinking/evaluation
|
8
|
9
|
9
|
Difficulty
|
|
7. Active engagement with healthcare providers
|
5. Active engagement with healthcare providers
|
[Please indicate how easy or difficult the following tasks are for you to do now:] Ask a healthcare provider to explain things to me
|
Interaction
|
7
|
8
|
8
|
Difficulty
|
|
8. Supported by healthcare providers to understand information
|
6. Supported by healthcare providers to understand information
|
At least one healthcare provider has helped me understand information about cancer
|
Support networks**
|
8
|
10
|
10
|
Agree/disagree
|
|
9. Communication with the care recipient
|
7. Communication with the care recipient
|
I have honest talks with the person I care for about how the cancer may impact on the future
|
Interaction
|
8
|
8
|
8
|
Agree/disagree
|
|
10. Understanding the care recipient
|
8. Understanding the care recipient
|
I know how much help to give the person I care for
|
Comprehension
|
9
|
9
|
9
|
Agree/disagree
|
|
11. Financial and legal support
|
Considered a broader contextual factor related to availability of support from Government services
| |
-
|
-
|
-
|
-
|
|
12. Practical support
|
Considered a broader contextual factor related to availability of support from community services
| |
-
|
-
|
-
|
-
|
|
13. Psychosocial support
|
Subsumed into “Understanding the healthcare system” to ensure relevance of items to all caregivers
| |
-
|
-
|
-
|
-
|
|
14. Social support
|
9. Social support
|
I have at least one person who understands and supports me
|
Support networks**
|
9
|
7
|
7
|
Agree/disagree
|
|
15. Self-care
|
10. Self-care
|
I regularly take time away from caring
|
Responsibility
|
11
|
12
|
12
|
Agree/disagree
|
|
16. Role recognition and understanding caregiver rights
|
Statements within the sub-theme although conceptually related were considered unable to be additively combined, thus were excluded from the scale
| |
-
|
-
|
-
|
-
|
|
17. Attitudes, approaches, and emotional challenges
|
Statements within the sub-theme although conceptually related were considered unable to be additively combined, thus were excluded from the scale
| |
-
|
-
|
-
|
-
|
| |
Total items in scale
| |
84
|
89
|
88
| |
