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Table 6 Revised items following expert suggestions for revision

From: Development of the Health Literacy of Caregivers Scale - Cancer (HLCS-C): item generation and content validity testing

Construct Item # Initial item Revised item Comments from experts
Supported by healthcare providers to understand information 50 Healthcare providers have helped us compare information about treatments Healthcare providers have helped me compare information about treatments Consider using ‘me’ rather than ‘us’ to avoid confusion
  57 Healthcare providers have helped me understand the potential side effects of treatments Healthcare providers have helped us understand the potential side effects of treatments Consider using ‘me’ rather than ‘us’ to avoid confusion
Communication with the care recipient 58 After appointments, I discuss the information given by doctors with the person I care for After appointments, I discuss the information given by healthcare providers with the person I care for Referring to doctors or all healthcare providers
Understanding the care recipient 14 I understand when to let the person I am caring for do things by themselves in their own time I understand when to let the person I am caring for do things for themselves in their own time Perhaps “for themselves” better captures the concept
  30 I know which everyday activities the person I care for would like to be involved in I know which everyday activities the person I care for would like to do Changing “involved in” might improve clarity
   I know which everyday activities the person I care for can participate in I know which everyday activities the person I care for can do Changing “participate in’ to “can do” might improve clarity
Social support 4 There is at least one person who understands and supports me I have at least one person who understands and supports me Consider changing the stem to follow other items
  12 I have strong support from at least one family member I have strong support from at least one family member or friend Is it necessary to differentiate between family member and friend
  66 I have strong support from at least one friend Not applicable: Subsumed into above item As above
  20 I get plenty of chances to talk to other people who are caring for someone with cancer I get enough chances to talk to other people who are caring for someone with cancer Might not need ‘plenty’
  44 I have family or friends who can attend medical appointments with us I have at least one family member or friend who can attend medical appointments with us Identifying one person would be adequate