Construct | Comments from experts | New item |
---|---|---|
Understanding the healthcare system | (General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient | I know what healthcare services are available to help the person I care for |
Adequate information about cancer and cancer management | Suggest including additional items about managing side effects, and caregivers’ having enough information to support the care recipient | I know which side-effects require immediate medical attention |
 |  | I know the routine things the person I care for needs to do to look after their own health |
 |  | I know what healthcare services are available to help me |
Processing health information | Suggest including additional questions that explore caregiver’s capacity to identify relevant information | [How easy or difficult is it for you to…] Work out which sources have information that is relevant for the person I care for |
Supported by healthcare providers to understand information | (General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient | Healthcare providers have helped me understand services available for the person I care for |
 |  | Healthcare providers have helped me understand services available to support me |
Active engagement with healthcare providers | (General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient | Ask a healthcare provider to explain what healthcare services are available to help me provide care |
Self-care | Suggest including a question about physical activity or exercise | Despite other things in my life, I make sure I regularly exercise |