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Table 7 New items following expert review and reasons for inclusion

From: Development of the Health Literacy of Caregivers Scale - Cancer (HLCS-C): item generation and content validity testing

Construct Comments from experts New item
Understanding the healthcare system (General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient I know what healthcare services are available to help the person I care for
Adequate information about cancer and cancer management Suggest including additional items about managing side effects, and caregivers’ having enough information to support the care recipient I know which side-effects require immediate medical attention
   I know the routine things the person I care for needs to do to look after their own health
   I know what healthcare services are available to help me
Processing health information Suggest including additional questions that explore caregiver’s capacity to identify relevant information [How easy or difficult is it for you to…] Work out which sources have information that is relevant for the person I care for
Supported by healthcare providers to understand information (General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient Healthcare providers have helped me understand services available for the person I care for
   Healthcare providers have helped me understand services available to support me
Active engagement with healthcare providers (General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient Ask a healthcare provider to explain what healthcare services are available to help me provide care
Self-care Suggest including a question about physical activity or exercise Despite other things in my life, I make sure I regularly exercise