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Table 7 New items following expert review and reasons for inclusion

From: Development of the Health Literacy of Caregivers Scale - Cancer (HLCS-C): item generation and content validity testing

Construct

Comments from experts

New item

Understanding the healthcare system

(General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient

I know what healthcare services are available to help the person I care for

Adequate information about cancer and cancer management

Suggest including additional items about managing side effects, and caregivers’ having enough information to support the care recipient

I know which side-effects require immediate medical attention

  

I know the routine things the person I care for needs to do to look after their own health

  

I know what healthcare services are available to help me

Processing health information

Suggest including additional questions that explore caregiver’s capacity to identify relevant information

[How easy or difficult is it for you to…] Work out which sources have information that is relevant for the person I care for

Supported by healthcare providers to understand information

(General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient

Healthcare providers have helped me understand services available for the person I care for

  

Healthcare providers have helped me understand services available to support me

Active engagement with healthcare providers

(General comment) It is important for caregivers to understand what services and supports are available for the caregiver and care recipient

Ask a healthcare provider to explain what healthcare services are available to help me provide care

Self-care

Suggest including a question about physical activity or exercise

Despite other things in my life, I make sure I regularly exercise